Metabolic Camp Experience
Out of abundance of caution due to COVID-19, we will have a virtual camp for 2021, called Metabolic eCamp via Zoom. Similar to our in-person camp, the virtual camp offers research, education, and social support. Metabolic eCamp will take place June 23-25, 2021, with approximately 30 campers and 20 staff.
The camp program is comprised of:
- Nutrition Counseling Groups – Daily nutrition management counseling sessions conducted by medical faculty (registered dietitian) and an assistant (nutrition student).
- Large Group Classes – Topics may include nutrition management, genetics, maternal PKU, reproductive health, exercise, and others. Classes are taught in large group setting and in breakout groups.
- Small Activity Groups – Themes may include cooking, medical food taste testing, personal wellness, art, and others. Activities are conducted in small group settings.
- Social Support – Activities may include icebreakers, games, formal & informal discussions with presenters, staff, and fellow campers.
|Nutrition Counseling Session
|Patient Story |
Daily Recap | Closing
Sample Cooking Class Recipes
Camp Teaching Focus
Metabolic Camp focuses on lifelong MNT of IMDs, new PKU and IMD therapies, treatment adherence, transitioning care, MPKU featuring stories from PKU moms for campers, reproductive choices, and pregnancy planning.
This year’s camp welcomed a variety of girls and young women from 8 US States, plus Canada and Argentina.
Camper Feedback and Satisfaction
RDs learned about campers’ barriers to adherence in camp setting that are not often revealed in clinic setting. In addition, 13 campers responded to a post-camp survey to provide formal feedback.